Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey.

Bone Pain

Tagged: Bone pain

This topic has 3 replies, 4 voices, and was last updated 1 month, 1 week ago by Kenan White.

Viewing 4 posts - 1 through 4 (of 4 total)

Author

Posts
November 3, 2024 at 3:38 pm #67856

Del Fidanque
Participant

My MDS doctor says that most MDS patients experience the bone pain in the Iliac bones but mine runs from the buttock down the back of the leg and concentrates near the ankle bone. My HSS doctor says that pain is a result of arthritis and spinal stenosis. Just wondered if other MDS patients have experienced what I’m going through and if they have tried any remedies. Thanks for contacting me. Del F.

November 17, 2024 at 10:23 am #67868

Robert Sepe
Participant

That is not MDS bone pain.. I’ve had it. MDS bone pain is relagated to the large bones. Typically leg and sternum. Her bone pain is likely result of stenosis.

February 4, 2025 at 5:35 pm #67929

Ashley Moncrief
Moderator

Hi,

Just curious if you had a bone marrow biopsy before the pain started. When they go in to get the sample, there are nerves that can get irritated. Those nerves continue down your leg. It might be worth asking your doctor about.

Have a great day!

Ashley

March 11, 2025 at 9:41 am #67963

Kenan White
Participant

I too have pain after treatment but it does concentrate in ‘big bones’ and can be intense – Claritin seems to help
Author

Posts

Viewing 4 posts - 1 through 4 (of 4 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.