Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey.

High risk mds with tp53 mutation

This topic has 2 replies, 2 voices, and was last updated 1 month ago by Ashley Moncrief.

Viewing 3 posts - 1 through 3 (of 3 total)

Author

Posts
February 10, 2025 at 11:30 am #67945

Cindy Scally
Participant

Recently diagnosed. Started chemo, spent month in hospital after with pneumonia and met with bone marrow transplant Dr. Said with mutation and I cannot survive bone marrow transplant. Husband and kids trying research studies to know avail. Have Medicare advantage plan not being accepted with different hospitals. Any suggestions. Don’t want to give up?

March 18, 2025 at 7:00 pm #67968

Ashley Moncrief
Moderator

Hi Cindy,

I’m so sorry to hear about your situation. If you are looking for a clinical trial, you can try our clinical trial portal. I put the link below. The staff there are great and can help see if you might be eligible.

https://mdsf.sparkcures.com/

I hope this helps!

March 18, 2025 at 7:00 pm #67969

Ashley Moncrief
Moderator

Hi Cindy,

I’m so sorry to hear about your situation. If you are looking for a clinical trial, you can try our clinical trial portal. I put the link below. The staff there are great and can help see if you might be eligible.

https://mdsf.sparkcures.com/

I hope this helps!
Author

Posts

Viewing 3 posts - 1 through 3 (of 3 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.