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Inqovi

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  • #67946
    Helen Montgomery
    Participant

    I was diagnosed with CMML last year and started receiving treatment with Luspatercept injections in September. I got my last injection of Luspatercept last Thursday….to date there have been no positive results….I go for bloodwork again tomorrow. I have been getting blood transfusions every 2-3 weeks. The doctor is suggesting a next step of a low dose oral chemo called Inqovi…..I would like to hear from anyone who has been on or is currently taking Inqovi to understand the ramifications and side effects. With Luspatercept I have experienced a great deal of fatigue and irritability…..for a very active and otherwise healthy person….I am not on ANY drug medications for anything else….the fatigue and irritability is a lot to handle.

    #67970
    Ashley Moncrief
    Moderator

    Hi Helen,

    I reached out to Taiho who makes Inqovi. They have a “What to Expect” section on their website that covers side effects. I put the link below. I know it’s not the same as hearing from someone who’s been there but maybe it will help a little.

    https://www.inqovi.com/side-effects

    Have a great day!

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