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Lenalidomide

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  • #67965
    Jeffrey Kassover
    Participant

    I have MDS with 5Q mutation. I Started taking Lenalidomide 2 1/2 weeks ago and today’s bloodwork showed no change. How long does it take before I might see positive results

    #67966
    Janet
    Participant

    Jeffrey: We are all a little different, but about a month into treatment my RBC and Hemoglobin rose to near normal. That was great news for me because it was low before treatment and I was not looking forward to transfusions. Plus,I felt terrible. Now levels are normal for RBC and HG. The Revlimid does affect my platelets and neutrophils which were very low on the initial 10mg dose. I had to wait about 6 weeks for the values to come back up. Then I started round 2 at 5mg. The 5mg dose is starting to impact platelets and neutrophils again. Now we are trying a two week break versus a 1 week break. I have been on the med about a year. I feel fortunate that there is a drug that works so well for del 5Q.
    Janet

    #67967
    stacey
    Participant

    Jeffrey,
    When I took Revlimid for 5q- MDS, it would always take 6-8 weeks for me to see an improvement in my red blood cells and hemoglobin. That was even the case whenever I took a summer break and restarted the medicine the following fall. Best of Luck to you.
    -Stacey

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