Low risk MDS progressed to AML

[Rok Gerl]

Hello,

I’m wondering if anyone has been in a similar situation. My dad was diagnosed with low risk MDS last December. Over the last 12 months he has had severe blood transfusions along with starting lenalidomide. He has had adverse reactions to the drug, mainly rashes, along with a drop in his platelets and so they have been monitoring him more closely to get a handle on things. Unfortunately through frequent monitoring they have found that his blasts are sitting at 27%, 7% over the MDS/Leukaemia threshold. They did a second bone marrow biopsy and we are waiting for the results to come back so that we can definitively say that it is AML and start to customize the plan of attack for chemotherapy.

Just wondering what the plan of attack has been for others who may be in or have been in a similar situation.

[Rok Gerl]

Just a quick check in in case others are reading. Genetics came back and it was confirmed that we are dealing with a specific type of aml. My dad has begun chemotherapy and will hopefully come out on the other side in remission. The doctors have also said he is eligible for a stem cell transplant, which in my mind is positive…🤷🏻‍♀️.

Fingers crossed. Would be interested to hear any other experiences!

[Janet]

Rok – sorry to hear your dad has progressed to AML. Since he is able to have a transplant, I hope he is on the list!

[Ashley Moncrief]

Hi Rok,

We have a few patients who have gone through transplant and are willing to share their stories. If you are interested in speaking with one of them, give me a call at 1-800-637-0839 ext. 210 or email me at amoncrief@mds-foundation.org.

Hope all is going well!

Ashley

[Author]

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