Recent DX with MDS SF3B1

[Gary W Flesche]

Recent DX with MDS SF3B1 after 6 years of remission from DLBC Lymphoma. Will start Reblozyl tomorrow.
What should I anticipate for side effects?

[Debra Horak]

My husband’s blood pressure increased when he started Reblozyl, but it has been controlled with blood pressure medications.

[Ashley Moncrief]

Hi Gary,

Thanks so much for reaching out. The most common side effect I hear about is fatigue. It can be hard because your numbers may start to rise but you don’t see an increase in energy right away. Some of the other more commonly reported side effects include muscle/bone pain and dizziness. The side effects typically do get better with time. Talk to your doctor about your side effects because changing the dose may also be a possibility.

Bristol Myers Squibb is the company that makes Reblozyl. They have a patient hub called Your Reblozyl Connection. I highly recommend signing up because it gives you information tailored to where you are on the treatment journey. I put the link to join below.

https://www.reblozyl.com/mds/how-reblozyl-works/why-reblozyl?cid=sem_2785260&gclid=c23696c0e3f214cc62d8f1624dde5b0f&gclsrc=3p.ds&msclkid=c23696c0e3f214cc62d8f1624dde5b0f

I hope this helps!

Ashley

• This reply was modified 2 months, 2 weeks ago by Ashley Moncrief.
• This reply was modified 2 months, 2 weeks ago by Ashley Moncrief.
• This reply was modified 2 months, 2 weeks ago by Ashley Moncrief.

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